idw – Informationsdienst Wissenschaft
Nachrichten, Termine, Experten
Nachrichten, Termine, Experten
idw - Informationsdienst
Wissenschaft
Scientists from Germany and abroad can now for the first time apply for data from the German National Cohort (NAKO) from the baseline and the first re-examination, the 5-year follow-up. NAKO is the largest longitudinal health study in Germany. The data from two different time points enables research projects to study development of diseases and the underlying causes. This is valuable, so far unprecedented, information for new prevention strategies.
The aim of the German National Cohort (NAKO) is to better understand the causes of common diseases such as cardiovascular conditions, cancer, diabetes and infectious diseases, to identify risk factors in the population and uncover ways of effective prevention.
Scientists from all countries of the European Union (EU) and the European Economic Area (EEA) as well as countries that fulfil the requirements of the European General Data Protection Regulation (GDPR) can submit applications for data and biosamples from the baseline (study period 2014 to 2019) as well as for the data from the examinations, interviews and MRI from the first re-examination (study period 2018 to 2024) for scientific purposes.
„The approximately 700 ongoing or completed research projects based on the baseline examinations have already provided us with valuable insights into the health of the population across the 16 study regions as well as into urban and rural lifestyles. Thanks to the data now available from the 5-year follow-up examinations alongside information from health insurance companies and registries, we can now explore the causes of disease development. In particular, these data studies will help us to better understand early onset of common diseases and the role of both established and emerging risk factors. This marks a major milestone for the NAKO, which we have been working towards over the past ten years,’ reports Professor Dr Annette Peters, Chair of the Board of Directors of NAKO e.V.
Around 2,400 researchers are already registered in NAKO’s application portal “TransferHub“ (www.nako.de/transferhub). Through this platform, they can submit applications to access data, MRI images and biosamples for research purposes. Eligible applicants include research institutions, universities and research-based companies. Each application is reviewed by a panel of experts - the Use & Access Committee - as well as the Board of Directors of NAKO e.V. to assess whether the proposed project can be conducted with the available NAKO data. Before access is granted, users will need to sign an agreement with the NAKO to ensure that all data and biosamples are used solely for the approved purpose and in full compliance with the GDPR. Research findings are published in scientific journals and contribute significantly to areas advancing knowledge in health and medicine.
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Medicine
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Organisational matters, Transfer of Science or Research
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